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Testimonials

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Liham's Story

Liham, born in January 2022, was diagnosed with FHLH and MVID at birth. After a bone marrow transplant, he was able to return home and his parents decided to create The Cure MVID Association to help research find a therapy for this disease.

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02

Fatima's Story

The story of Fatima, born in February 2022, is marked by a diagnosis of MVID at birth. Her parents spent four months in the intensive care unit, learning to manage her complex condition.

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03

Batuhan's Story

This is the story of little Batuhan (2.5 years old) as told by his mom, Süreyya. Batuhan was diagnosed with MVID in 2021 and has been on total parenteral nutrition ever since. Despite the difficulties he endures, he continues to fight and keeps smiling.

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